Client Story
How PHM supported Willa and her family through a rare childhood disease diagnosis.
Presentation
Willa, a 6-year-old girl, was diagnosed with Systemic Juvenile Idiopathic Arthritis (sJIA), a rare type of arthritis in children caused by an overactive immune system. Following the initial diagnosis, her family felt that the care she was getting locally was not meeting their needs, as treatment focused on controlling inflammation and not preventing joint or organ damage required careful management. The family turned to PHM for help.
PHM IMPACT
Willa’s PHM Personal Care Team immediately identified and scheduled a consultation with an expert. The most appropriate medications were identified, and molecular profiling was ordered. PHM provided the family personalized Child Life Specialist support, including private meetings for Willa and her parents. This included parental guidance in how to navigate challenging conversations about her illness and how to support and empower Willa when facing discomfort about needles and injections.
PHM worked diligently to obtain coverage of a key medication ($23,000/injection) and ensured timely medication delivery and home nursing.
outcome
PHM enabled Willa to taper completely off all oral medications, which had not been possible since her initial diagnosis. Her pain fully resolved. Her fear of needles was significantly refuded thanks to PHM’s Child Life Specialist team.
“The team has completed a comprehensive clinical summary and built a beautiful (and the best charts I’ve ever seen) clinical timeline with extensive detail including initial symptoms, medications, lab trends, and consultations.”
PHM helps you navigate the toughest health conditions confidently. Learn more about our expert guidance of serious and complex conditions here.
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