Client Story

Myelin Oligodendrocyte Glycoprotein Antibody Disease (MOGAD)

Two men on a golf course

Presentation

The parent of an employee initially presented with a sudden inability to walk with progressive paralysis after a recent viral illness

After collapsing on the golf course, he was transported to a local hospital and was then transferred to a top neurology institution.  

He continued to experience increased paralysis up to his mid spine, including inability to void.  

MRI showed extensive lesions from T1-T7 with patchy enhancements and subcortical lesions throughout the brain.  

PHM Actions

Upon initial involvement, the PHM team coordinated with the attending neurologists and facilitated comprehensive diagnostic workups, including cerebrospinal fluid analysis and advanced neuroimaging, to elucidate the underlying etiology. 

The team expedited a consultation with a leading expert in demyelinating diseases, ensuring the patient received cutting-edge diagnostic and therapeutic insights promptly during hospitalization.  

PHM provided holistic support, addressing not only the medical needs but also offering substantial emotional and psychological support to the patient and their family, mitigating their anxiety about the uncertain prognosis and complex medical information.  

Through persistent advocacy, the PHM team facilitated the confirmation of a definitive diagnosis of MOGAD, which guided the initiation of targeted immunotherapy, including high-dose corticosteroids and intravenous immunoglobulins (IVIG).  

Post-acute phase, PHM ensured the patient’s discharge plan included intensive rehabilitation services, home health care coordination, and follow-up appointments with neurology and rehabilitation specialists to optimize functional recovery. 

Outcome

The PHM team’s intervention was pivotal in achieving an accurate and timely diagnosis of MOGAD, significantly influencing the patient’s treatment course and prognosis.  

Intensive and early therapeutic measures, advocated by PHM, led to a more rapid and effective improvement of symptoms, facilitating a swifter neurological recovery.  

The PHM team’s comprehensive discharge planning enabled the patient to transition smoothly from hospital to home, equipped with a robust plan for continued rehabilitation and long-term management of his condition.  

The PHM Difference

“Thank you for all you have done. It has been a tremendous help to his care and the family. We reached out in a time of need and you all jumped right in. You have been instrumental in all the progress he has made. You identified the likely conditions and the top expert. Your assistance helped him get the right treatment days earlier. Thank you all for your help.” 

A mother and daughter laugh in nature.

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